Expert Tips and Interviews on Living with Parkinson's Disease
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Michael Okun Indu Subramanian Jonny Acheson

 

3 Tips to stay safe if you considering stem cells for Parkinson's

There have been recent estimates that there are thousands of stem cell clinics in the United States and many more worldwide.

There has been a big concern that we are not educating folks on how to keep them safe.

Here are some video safety tips for staying safe with Parkinson’s stem cells:

  • There is no FDA approved stem cell therapy for Parkinson’s disease.

  • Clinics who claim to treat a lot of diseases with stem cells (Parkinson’s, MS, ALS, autism etc.) should raise a red flag as no therapy (stems cell or others) treats/cures all diseases.

  • There is no cure for Parkinson’s disease and stem cells are not a cure.

  • Ask the stem cell clinic for the informed consent for the procedure and for any IRB approved research projects (ask for protocols and consents). Pause and bring those consents to your neurologists and doctors to help advise you before you sign anything. Walk away if you feel pressured to sign anything before consulting with your doctor.

  • You should never be charged for an experimental therapy and stem cells is still a research based therapy. We are still learning how they may be useful for research; and perhaps for care.

  • Even if a trial is listed on clinicaltrials.gov for Parkinson’s and stem cells that does mean it is a “real trial”— and it has been pointed out by epxerts that people can list “safety studies” and claim they are doing research— and have the data to support clinical use in people. This is not true.

  • The podcast Bad Batch by health writer Lauren Biel on Wondery (her dad had Parkinson’s), is a MUST listen for those interested in this therapy.

  • The Parkinson’s Foundation created some guidance for people seeking information on stem cell treatments for Parkinson’s.



Michael Okun